Ethics Guidance for Occupational Health Practice 9th Edition - Book - Page 97
5.20. Issues can arise in a workplace setting in relation to whether participation is
truly ‘voluntary’. Manipulation or coercion of the worker must not be used to
encourage or equally discourage participation or withholding certain
information.
5.21. Clarification of confidentiality and also the relationship between the study team
and the employer is of utmost importance in this regard. Due attention should
be paid to the perception of workers and whether the presentation of the
research might make them feel that their employment position could be
affected, adversely or favourably, by their decision on whether to participate or
not.
5.22. Similarly, misrepresentation of the importance of the research or the possible
impact on workers’ personal health or career is unethical. Information for
workers about the purpose, risks and benefits of the research should be
presented in a way and in language that they can understand. The level of detail
should be neither overly complex nor too vague and should reflect what a
reasonable person needs or wants to know to decide on participation.
5.23. Researchers should be prepared to provide more detailed information on
request using reasonable media. Researchers must also consider the potential
power imbalance inherent in the employer/worker relationship. Involving
relevant stakeholders in developing communication and information sheet such
as workers’ representatives or, in the NHS a Patient and Public Involvement
Working Group, at an early stage in study development can be helpful in
avoiding some of these pitfalls
5.24. Specific issues that should be addressed include:
The identity of the research team (for example inhouse or outsourced
occupational health providers, or an independent academic team).
Arrangements for access to counselling or other sources of advice to mitigate
any identified potential harm or distress.
A complaints procedure and arrangements for compensation in the event
of study related injury.
Information governance including data processing, retention, safety and
security and the pertinent safeguards, including information on how the study
will be reported.
A participant information sheet 77
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